The Noonan Syndrome Support Group, Inc. family meeting being held in Boca Raton, FLORIDA August 1 - 2, 2008 .

We will also be holding our silent auction, a fund raiser, that helps to defray some of the expenses for the meeting. Additional information and the registration for the meeting is available on line at :

http://www.noonansyndrome.org/2008meeting.htm Please email me directly, wanda@noonansyndrome.org , if you plan to attend, your registration will need to be mailed via postal mail.

This is your chance to greet old friends, make new friends, learn more about Noonan Syndrome and meet others affected by Noonan syndrome.

We desperately need items for the silent auction, please consider donating either a Theme Basket (of items) or an individual item that can be auctioned off. Items should be sent to Martha Goodwin, 204 Coral Trace CT, Delray Beach, FL 33445 . ASAP. Make sure items are clearly described with the current value. This will allow us to provide you with your (tax deductable) receipt, and set an accurate opening bid.

Below you will find a little information about the meeting, the who-what and where.

August 1, 2008 -Friday Registration for the conference will be between

3:00 PM and 8:30 PM on Friday August 1st, 2008 – This will include a Ice Cream Social followed by opening remarks by Dr. Noonan

August 2, 2008- Saturday Continental Breakfast

August 2, 2008 Saturday Meetings and Workshops

August 2, 2008 Saturday Lunch

August 2, 2008 Child Care - Saturday

August 2, 2008 Clinic (limited number of appointments)

August 2, 2008 Saturday Dinner and Silent Auction

Keynote Speaker

Dr. Jacqueline Noonan, Professor, Pediatric Cardiologist, University of Kentucky College of Medicine, Lexington, Kentucky

Speakers

Bruce D. Gelb, M.D. Professor, Pediatrics / Cardiology Professor, Genetics And Genomic Sciences, Mount Sinai School of Medicine , New York, NY

Dr. Mary E.M. Pierpont, Pediatric Geneticist and Cardiologist, Children’s Hospital, St. Paul, MN

Dr. Amy Roberts, Clinical Geneticist, Instructor, Harvard Medical School

Children's Hospital Boston, MA

Proposed Workshop Topics

Orthopedics – Hematology – Behavioral issues– Fundraising – Growing up with NS -- Adults and Teens with NS - Advocates as teachers and Parents– Dental Issues— Ophthalmology Issues

TNSSG is grateful to the First Baptist Church of Boca Raton for allowing us to use their facilities.

The TNSSG, Inc. International Conference will be held August 1 and 2, 2008 at the First Baptist Church of Boca Raton, FL: 2350 NW 53rd Street/Yamato Road, Boca Raton, FL 33487.

TNSSG has negotiated reduced rates at the Embassy Suites Hotel, Boca Raton: 661 NW 53rd Street, Boca Raton, FL 33487; 800-Embassy or 561-994-8200

Reservations can be made by calling 800-Embassy or 561-994-8200 , and referencing The Noonan Syndrome International Conference.

Remember reservations MUST be made by Friday, July 18, 2008 in order to qualify for the discounted group rate. Rooms are limited so reserve early.

With every Embassy Suites Hotels stay, enjoy: Spacious two-room suites, Complimentary cooked-to-order breakfast and Nightly Manager's reception .

The following link will take you to web pages as they appeared in a book published to honor Dr. J. Noonan's (March 18th, 2008) Lifetime Achievement Award. 68 pages of pictures and words of congratulations honoring Dr. Noonan. Thanks to the generosity of many of our families The Noonan Syndrome Support Group, Inc. will be represented at the award ceremony, at which time we will present her with her book ' A Tribute to Jacqueline A. Noonan, M.D.' By Family and Friends of The Noonan Syndrome Support Group, Inc..

Click here to see the cover and pages 1-3, click the link at the bottom, of that page, to see the next page (s) of the book.