Our Stories
Gallery of Stars 4-2-08
Q & A What Families Think
Dr. Allanson Q & A
Order: Information about NS
Giving
Research
More Information (Links)

 

 

"No act of kindness,

no matter how small,

 is ever wasted"

- AESOP

                   

 

  GoodSearch: You Search...We Give!

 

 

  You can join the TNSSG group or our cause on FACEBOOK

 

 

 

 

This is Leah Schottenstein


 redpeanut50@aol.com


Chicago, IL


USA

 


   
I was diagnosed with Noonans Syndrome in my early teens.  I struggled a great deal in grade school, but am doing wonderful in college.  I am currently in my early 20s and finishing up college with a degree in special education.  I have a mild hearing loss, and received hearing aides while in high school.  I have been generally healthy, but have had many ear infections and sinus infections.  While under the age of 5, I had 3 sets of tubes, an adenoidectomy, and a ptosis correction.  I am just under 5 feet and took growth hormones for several years.  I have an innocent heart murmur.  I have pectus excavatum.  I have many of the behavioral/social characteristics found in NS.  I had a hard time socializing and making/keeping friends while growing up, but am having a much better time in college.  I was delayed in puberty.  I have speech difficulties and am still receiving speech therapy.  Received OT for sensory integration, visual motor control, balance, vestibular integration, visual memory, and spatial relationships for 1 year.  I have a high arched palate. I am a picky eater.  I had problems in fine motor coordination, which is much better now.  I have some physical appearanceds as well.