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Our Stories Gallery of Stars 4-2-08 Q & A What Families Think Dr. Allanson Q & A Order: Information about NS Giving Research More Information (Links)

"No act of kindness,
no matter how small,
is ever wasted"
- AESOP
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This is Leah Schottenstein
redpeanut50@aol.com
Chicago, IL
USA
I was diagnosed with Noonans Syndrome in my early teens. I struggled a great
deal in grade school, but am doing wonderful in college. I am currently in my
early 20s and finishing up college with a degree in special education. I have a
mild hearing loss, and received hearing aides while in high school. I have been
generally healthy, but have had many ear infections and sinus infections. While
under the age of 5, I had 3 sets of tubes, an adenoidectomy, and a ptosis
correction. I am just under 5 feet and took growth hormones for several years.
I have an innocent heart murmur. I have pectus excavatum. I have many of the
behavioral/social characteristics found in NS. I had a hard time socializing
and making/keeping friends while growing up, but am having a much better time in
college. I was delayed in puberty. I have speech difficulties and am still
receiving speech therapy. Received OT for sensory integration, visual motor
control, balance, vestibular integration, visual memory, and spatial
relationships for 1 year. I have a high arched palate. I am a picky eater. I
had problems in fine motor coordination, which is much better now. I have some
physical appearanceds as well.
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