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This is Kelly Mayr Highlands Ranch, CO
My name is Kelly Mayr. My husband Paul and I live in Colorado with our five children. Our journey with Noonan syndrome began in 2000 with the birth of our daughter Grace. She was our second child. Right after her birth they discovered she had Pulmonary valve stenosis. Within a week she had failure to thrive and severe reflux. The first year was rough but it got better. Grace was clinically diagnosed with Noonan syndrome at one year old. Grace was delayed in most areas of development. But, I am happy to say that she has now caught up. Grace is a happy, healthy 2nd grader. After Grace we went on to have three more children. Grace really enjoys her role of bossy older sister! Noonan syndrome has really enriched our family. We have met some amazing people that we never would have met otherwise. |