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"No act of kindness, no matter how small, is ever wasted"
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The is Monique & Vivian Harper Lake Charles, LA USA How or why you are connected to Noonan syndrome: Vivian (my daughter) was diagnosed in May 2005. We haven't been able to locate anyone else in Louisiana that is facing this condition so TNSSG is our only since of feeling like we belong. Thank you to everyone who shares their opinions and opens their lives to us. Optional: Our journey has been long and hard. When Vivian was 6 months we found out that our "perfect" little girl wasn't really perfect. Since then we have seen way too many Drs to count and undergone open heart surgery to repair an ASD, VSD, and pulmonary stenosis. Vivian is now holding her own and is half way thru her Kindergarten year. She has completely stunned all the faculty and staff at her school because when people read "syndrome" on a chart they want to immediately jump to conclusions. She was reading before she entered kindergarten and loved to prove it every chance she got. Her dad couldn't handle the stress of having a child with who needed special attention so we split up when she was 2. Since then her and I have managed to build a decent life for ourselves and as far as she is concerned she is just as normal as every other child born into this world. She is my hero. Any child who endures the pain and trauma that my angel has endured and still manages to wake up every morning with a smile on their face deserves the title of HERO.
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