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no matter how small,

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From: "Chris W"

Sent: Monday, November 05, 2001 2:40 PM

Subject: sad new and a loss to us all.

Hello friends, I unfortunately must inform everybody that Tom Bonderaunt passed away this morning at the age of 38 at Johns Hopkins. Tom had been in the hospital since May due to complications from his most recent heart surgery. Tom was an original member of the NS group and been to all the conferences since Wanda started it. He was the nicest guy you could ever get to know and quite an intelligent person. I know we will all miss him tremendously. His mother, Elenor, thanks the group for all their support they gave Tom. If anyone would like to work on ideas for a memorial fund or other remembrances Wanda or I would be happy to hear from you. On a personal note, I have lost my best friend and in many ways my own brother. I will miss him and will always carry the torch of his memory with me. Everyone take care.

Chris Wright 28 w/ NS Columbia, MD

From: "Chris W"

Sent: Tuesday, November 06, 2001 11:06 PM

Subject: Re: about Tom

Tom was 38 when he died, strangely enough our B-days were on the same day, exactly 10 years apart. As far as surgery is concerned for Joshua, the three important points are bleeding/and healing difficulties (we are slow at clotting in most cases), second is the condition called lethal hypothermia due to anesthesia (i however never experience this I don't think), finally there's fluid build up, particularly after heart surgery (this is what Tom died of). It is best that you ask your doctor all your concerns and be sure that he is aware of Joshua's Noonan's and the fact that his recovery time may be a bit longer. Also ask Wanda as she is the best authority. The best to you and Joshua. Take care. Chris Wright 28 w/ NS Columbia, MD

From: "Chris W"

Sent: Tuesday, November 06, 2001 11:44 AM

Subject: Condolences for Tom

Hello everyone, Well, I am still getting over Tom's passing. Thank you all for your thoughts and support. I am also grateful for having such a large family that cares for each other. I just wanted to let you know Toms mother, Elenor, is holding up well. She hasn't made any arrangements yet, but I'm sure she would appreciate our support as well. If any wish to send cards or flower, you can send them to: Elenor Berdaraunt

From: "Danna T"

Sent: Thursday, November 08, 2001 1:39 PM

Subject: Tom- Just four weeks ago

Four weeks ago when we heard Tom was getting really sick. Dezmond sent a drawing and wrote Tom a letter (best he could) Even though Dez is young he remembered Tom from one of the meetings. The reason Tom stuck out in Dezmond's memory is because Dez remembers talking with Tom about being short. He told Tom which I thought was kind of funny, Wow you look really tall. I hope I get as tall as you. Dez looking up from his 38 inches at the time. Tom we love you and will always remember your smile that lighted up the room. Dana Mom to Dezmond age 7 NS

From: "Laura M"

Sent: Wednesday, November 07, 2001 12:23 PM

Subject: Tom

Wanda, Please share with Tom's family our deepest sympathies at their, and our, great loss. Tom was such an important member of our group. He and I had originally connected through NORD and I shared your info with him when I learned of the new group. We were thrilled to meet in person at the first meeting and have enjoyed catching up and sharing at each gathering. We will feel the empty space this year, though his openness and honesty that first year certainly set a tone which continues today.

Tom and I had enjoyed chats about life and everyday living, but I especially appreciated his willingness to share his feelings and experiences, as an individual with NS, with me, a parent of a child with NS.

Tom will be fondly remembered by our family. We will miss our annual visits with him. And our hearts and prayers go out to his family at the loss of such a wonderful person.

Fondly, Laura, Bill and Amanda Murphy

From: "Hauck, P"

Sent: Wednesday, November 07, 2001 10:21 AM

Subject: RE: Tom

Wanda: I am so very sorry to hear about Tom. He was such a nice man. I really enjoyed talking with him at the conferences, and enjoyed listening to him when he talked on the panel. I can't believe we won't see him at our next meeting. How sad. This scares me, we know so little about the adults with NS and people like Tom were a source of information for us. I really worry about all of our NS kids and pray they can all live long normal adult lives.

Hugs, Pamela Hauck

From: "Robinson"

Sent: Wednesday, November 07, 2001 9:59 AM

Subject: Tom

Hello all, Tom Bondurant an adult with Noonan syndrome died on Monday, his funeral is tomorrow, there will be 2 viewings today at Evans Funeral home in Cockeysville, MD. I will go to the one tonight, I am going to take some of the e-mails that have come in regards to Tom, I do not think his family knew how important he was to us, or we to him. He visited me here in my home, and he attended all of our meetings. He was brave enough to sit on our speakers' panel at our first meeting, with The Doctors. He was an honest and sincere man, sharing his story with a humbleness and humility that you do not see very often. His mom said that at last he was at peace. When I saw Tom in February he talked about planning a field trip for the adults who attended the next meeting. As he felt that when the meeting was over they had no time to be social. Maybe those adults living in MD (with NS) can plan this as tribute to Tom? Let me know what you think. If any one has any thing they want to share with Tom's family about him, or what meeting him meant to them, please e-mail it on today. I had an arrangement of flowers sent from the group, and would like to have a star registered in his name as we did for Shauna Palmer. I waited till this AM to tell Darcie about Tom's death, she wanted to know why all the good people have to die, and told me that it was hard being a noonie and having her friends die.

Wanda Robinson Founder & President

From: "Robin"

Sent: Tuesday, November 06, 2001 6:02 PM