Our Stories
Gallery of Stars 4-2-08
Q & A What Families Think
Dr. Allanson Q & A
Order: Information about NS
Giving
Research
More Information (Links)

 

 

"No act of kindness,

no matter how small,

 is ever wasted"

- AESOP

                   

 

  GoodSearch: You Search...We Give!

 

 

  You can join the TNSSG group or our cause on FACEBOOK

 

 

 

On hearing the diagnosis of Noonan syndrome the question most asked  'what is the life expectancy of a person with Noonan syndrome?'

 My official answer used to be 'that would depend on the severity of the heart condition affecting the person with Noonan syndrome.'

 I have learned that the question of life expectancy is not so simple... the pages that follow are a tribute to our Angles.

 

These are our Angeles

          These Angels walked before

                   Their journey of strife no more

                           They touched our hearts with their pure light

 

 

           These are our Angels

                  The tears we shed shine bright

                      Offering little solace in our darkest night 

                                 Then we remember our Angels pure joy

 

Of the hearts they touched, it is our journey no more

 

These are our Angels

Shauna Marie Palmer : Glen Thomas Bondurant


Hit Counter

Thank you for your kindness and generous support!
* The Noonan Syndrome Support Group, Inc. is a 501 (c)(3) tax exempt, non-profit organization.
Contributions are tax-deductible to the extent allowed by law.