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Tiny Titan, Journey of Hope" Published May, 2006. With a quiver of five healthy children and another on the way the Yurcek family had attained the American Dream. Jim's income provided for all the necessities and they made ends meet with frugal living. Ann's creativity added exclusively designed hand sewn clothes and healthy meals. They looked like a normal American family as they lived from paycheck to paycheck. All that was about to change with the birth of their sixth child born with a rare genetic disorder (Noonan Syndrome) . The Yurcek's were plunged into the invisible sea of nothingness. Jim lost his job and then another. Ann struggled with their dying baby and caring for five hungry little mouths. The parents went without food for days in order to feed the children. This is the story of miracles as a desperate family at the bottom climbs out. Incredibly they take a family of children even more desperate then they are with them. Tiny Titan is a story of the human American spirit, the personal angels who accompanied them and the resilient tiny titan who continues to affect the lives of many.

Ann continues her journey in giving she recently decided to donate a 100% of ALL proceeds* of book sales to TNSSG, Inc. *(from books sold by TNSSG, Inc.)

The Noonan Support Group Lapel Pin

The Noonan Support Group Pin - This pin is shaped like a heart and within the heart is a box with the group’s logo. The pin is set on a gold background. Each pin is $2.00 Order

The Noonan Syndrome Bumper Sticker

My name is Niki Hershey in our attempt to raise money for the TNSSG, I am very excited that we can raise awareness as well! I will be placing an order for 250 - 3" x 11 1/2 " inch bumper stickers.

The price of the bumper stickers are only $2.50 each. All proceeds will go directly to TNSSG, so PLEASE, PLEASE order as many as you can pass out to friends and family members!!! An additional $2.00 will need to be sent along with your orders for shipping costs. (not 2.00 per sticker, just 2.00 for the order) I hope to be able to ship out everyone's individual paid order by October 10th.

Please E-Mail me to place your order.

You can also send your order to me via email and pay me thru Paypal. My email address is: nikifeeney@hotmail.com

I know I'm forgetting some of the specifics, so please don't hesitate to e-mail me with any questions! E-Mail me
I will place the order for 250 stickers as soon as I hear some feedback from everyone. I will be in very big trouble should I buy these bumper stickers and no one is interested. We live paycheck to paycheck as it is. I know Wanda is interested in at least 5 and I think I'll be ordering about 5 to pass out to my family. Please contact me for more information or if you would like to start placing your orders.

TNSSG COMMEMORATIVE JEWELRY FOR SALE

A hammered copper heart outline threaded onto a 16 inch black cord with a sterling silver lobster claw closure

accented with a sterling silver bar that is hand stamped 'TNSSG' each piece was hand made by the advanced jewelry making class at the University of Wisconsin each piece has subtle and unique features

This one of a kind necklace can be yours for $40.00 all proceeds benefit TNSSG, Inc.

Hello! We are fundraising for The Noonan Syndrome Support Group, Inc. You can help simply by ordering online from Current Fundraiser. It's easy to do, you can choose from lots of fun and practical products, and 50% of your total purchase goes directly to my fundraising group! Just follow these easy steps:

Shop to your heart's content. You can choose from loads of reasonably priced cards, gift wrap, gifts, candy and treats, even popular magazine subscriptions. Look for special fundraiser Internet offers, too.

When you finish shopping and are ready to check out, you ill be asked to select: State:

Submit your secure order (using your credit card for payment). Your purchase will be shipped directly to you. Enjoy your top-quality Current products, while you help our fundraising goal!

Firstgiving provides an online fundraising service that is available to everybody through www.firstgiving.com. Any individual can use Firstgiving to support any registered U.S. tax-exempt organization.

We are having a bracelet fundraiser to raise funds for the Noonan Syndrome Group. These funds are greatly needed so we encourage all of you to participate! We will be selling the bracelets for $2.50 each. You are more than welcome to purchase any quantity that you want for yourself and family. The silicone bracelets are imprinted (debossed) on the outside as picture.

1 ½ - 2 minutes in the microwave or in the freezer overnight, makes this little “pain pal” truly a delight. On aching back or shoulders, or necks or hurting heads, apply it cold or heated for comfort it is said.

I have been working on an idea that I wanted to pass on to you. There has been a lot of discussion in the group about the leg and joint pain. My son also has issues and wakes up crying and screaming. I did a bunch of research and came up with a plan to make "pain pals". These are corn filled bags that you heat in the microwave or put in the freezer for a cold pack. In the research I did I found that rice and wheat can dry out, scorch and even catch fire with long term use. There are warnings on fire safety web-sites, Flax-seed is also sometimes used but due to it's high concentration of oil it may not be safe around oxygen. The bags that I make also come with a slip cover so you can wash the cover and not worry about the bag itself. If there are issues of getting bodily fluid the inner bag can also be put in a Zip lock baggie after heating to help keep it clean. I could offer these to the group for $8.oo each with 1 slip cover included. Additional covers would be $3.00 each. I would also give 50% back to the group. One "Pain Pal" would give the group $5.50. There would be a flat shipping charge of $3.95 US I haven't looked into overseas yet. I can also customize covers for character favorites etc... My sons is Elmo. Let me know what you think. Mari Hammel toyswithmari@mchsi.com

If you've ever wanted to crawl in the closet with an OREO - Tips for parenting a child with special needs- The Perfect book for the caregiver with major challenges, but little time or energy to read a bigger book. By Martha Kate Downey

Turn your antiques, PDAs, baseball cards and more into support for volunteering! List almost anything of value for sale on eBay Giving Works, and donate some or all of the proceeds to The Noonan Syndrome Support Group, Inc. You can list almost anything of value: get rid of things you don't need and do some good at the same time!

Your listings will stand out from other items on eBay with a special Giving Works icon, and you can donate as little as 10%, or as much as 100% of your eBay sale price. Plus, all donations are tax-deductible.

Start today! Clean out your closet or find a new home for grandma's painting. Whoever you are, everyone's got something to give! Here's how to start:

Wanda Robinson,
The Noonan Syndrome Support Group, Inc.,
P.O. Box 145
Upperco, MD 21155, USA
1-888-686-2224 within the USA
or 410-374-5245
info@noonansyndrome.org

Thank you for your kindness and generous support!
* The Noonan Syndrome Support Group, Inc. is a 501 (c)(3) tax exempt, non-profit organization.

Contributions are tax-deductible to the extent allowed by law.

Tiny Titan, Journey of Hope By Ann Yurcek

The Noonan Support Group Lapel Pin

The Noonan Syndrome Bumper Sticker

TNSSG COMMEMORATIVE JEWELRY FOR SALE